We are happy to join in the choir to sing praises to Elia, Happy and Healthy Now!
"Elia struggled most of her life with repeated unexplained vomiting episodes that started when she was 3 years old. When she was five she was diagnosed with Cyclical Vomiting Syndrome. Episodes would happen every 8 weeks, give or take a couple of weeks at times, and would always end up with a trip to the ER or hospital admission due to its severity. She would throw up every 1/2 hour to every hour for 48 hours or longer, with intense stomach pains, and dehydration. Other than vomiting and stomach pains during each episode, she had no other symptoms, and her episodes would come without a warning and would stop as suddenly as it started.
In July of 2015, she went through what we thought was the worst episode yet. She was admitted to the hospital and by the 5th day test results showed that she was suffering from pancreatitis and complete intestinal blockage caused by an unknown cystic mass next to the her duodenum (first part of the small intestine). It was during surgery one week later that they discovered that she had a duodenal duplication cyst, a very rare congenital anomaly. They were able to partially excise the cyst, avoiding a more complicated surgery. It would take another two weeks for her to heal. The arts and crafts box [Bedside Adventure Kit] that Discovery Arts left for her kept her busy and helped take her mind off any pain or discomfort she was having. She also received a beautiful yellow fairy dress, wand, and wings when Discovery Arts visited the play room. While she could not wear the dress yet, she happily donned her wings every time she took a walk around the hospital floor. I am happy to say that she only had two more vomiting episodes after the surgery and is doing very well despite the unexplained bile duct dilatation she is now being monitored for."
~ Elia's Mom Fides
Read more to learn how the minimally invasive surgery performed at the Pediatric Surgical Center at Miller Children’s Hospital helped Elia recover. She is now back to being a child and doing the things she loves like singing in her church choir.
"Saw your post last that night with my daughter holding up all her yellow goodies. That was the funnest day she had at the playroom. She loved the arts and crafts and was so thrilled that there was a yellow dress that fit her. Yellow is her absolute favorite color, as you can tell. I will also never forget the spark in her eyes when she saw the bed side box you guys left for her in her room while she was in surgery. It was a lovely surprise. I just want to thank you for playing an awesome part in her healing. She is doing well today and this Christmas was able to sing a solo and be a live model in a life size art piece. Thank you for being a blessing to her!" ~ Fides
Dear Fides and Family,
Thank you so much for the lovely card. Your note warms our heart. Knowing that your daughter found some comfort during a very scary time in your lives is what keeps us motivated. Be well and God Bless!
With Heartfelt Thanks,
The Cast & Crew at Discovery Arts
Bringing the healing power of the arts to children who are in the hospital undergoing treatment for cancer or life-threatening illness.